In this issue, Anna-Sara Lind gives an update on final results from the negotiations for a general data protection regulation in the European Union. You can also read about two papers: The first compares the risks associated with handling personal data in research to the benefits in terms of patient safety if individuals can be identified. The other suggests that it is not (yet) feasible for European research to give feedback of individual results. One reason is the lack of legal frameworks, guidelines and resources to support the feedback process.You can also read about the BBMRI-ERIC call for ELSI experts and find out how to choose good bioethics journals.
For more information, visit the Uppsala University Centre for Research Ethics & Bioethics (CRB) webiste.