B3Africa ELSI Workshop, The Gambia, 11-13 April 2016
More than 40 biobank and ethics experts from African and European institutions met to exchange on “Biobanking and ethics: the future landscape for European and African research” in The Gambia.
The B3Africa Ethics, Legal and Social Issues workshop, organized from 11-13 April, brought together B3Africa project partners, ‘Use Case’ institutes, as well as representatives from Ethics Committees and Governments from different countries.
The broad objective of the workshop was to identify legal and ethical issues and define concepts for the regulatory framework to be applied within an Information Technology (IT) platform that will be developed for the project.
The meeting was hosted by the Medical Research Council (MRC) – The Gambia Unit in Fajara, The Gambia.
B3Africa is a European Commission Horizon 2020 funded project with two strategic aims:
1. Create a harmonized ethical and legal framework between European and African partner institutions. A common ethical and legal framework is essential for a trustworthy informatics platform that will enable the sharing of bioresources and data and will also consolidate cooperation in biobanking between Africa and Europe.
2. Provide an “out-of-the-box” informatics solution (the eB3Kit) that facilitates data management, processing, and sharing and can also be used under challenging networking conditions in Africa and Europe.
Partners of the B3Africa project are: Sveriges Lantbruksuniversitet, Sweden; Biobanking and Biomolecular Resources Research Infrastructure Consortium, Austria; Karolinska Institutet, Sweden; Centre for Research Ethics & Bioethics at Uppsala University, Sweden; University of the Western Cape, South Africa; Makerere University, Uganda; Stellenbosch University, South Africa; International Agency for Research on Cancer, France; International Livestock Research Institute, Kenya; Medizinische Universität Graz, Austria; and Institute of Human Virology Nigeria.
In addition, selected members of the Low and Middle Income Countries (LMICs) Biobank and Cohort Building Network (BCNet) initiative will benefit from the eB3Kit: Breast Care International, Ghana; National Cancer Institute, Lithuania; Wroclaw Research Centre EIT+, Poland and the MRC Unit The Gambia.